To lift the fundraising burden from the shoulders of families and patients with Cystic Fibrosis. To raise awareness of Cystic Fibrosis, and to alleviate suffering, advance quality of life, and be sensitive to the needs of patients in Alaska.
- Growth from 10 to 30+ five-person team participants.
- Worked with Congressman Don Young to facilitate funding and opening of Clinical Trials for treatment of Mycobacterium Abscessus.
- Multiple newpaper articles raising awareness of CF.
- "March on the Hill" Advocacy in Washington DC, on behalf of patients for continued support of specialized care and needs
- Development/collaboration for an equestrian program for CF patients.
- Research and Development Grant Allocations for research of treatment and cure for Mycobacterium Abscess.
- Donation of at least $50,000.00 per year to the CF Foundation
- Donation to Providence Hospital's pediatric patient support Child Life Program.
- Donation of a "Starbright Fun Center" to Providence Hospital
SFTC was co-founded in 2006 by Ronnie Allen and Karen Rey. Karen's daughter has Cystic Fibrosis so both knew first-hand the effects of this devastating disease.
They heard a story of a young man with Cystic Fibrosis in Alaska who needed a lung transplant and was set to travel for the surgery. Due to Alaska's remoteness, and the inability for a caregiver to accompany him. he unfortunately died without being able to have the transplant. This was a motivating factor in starting a fundraising opportunity.
Taking care of Alaskans in need can be challenging because of travel distances, harsh weather, and lack of resources. Both Ron and Karen loved to shoot sporting clays and felt that a sporting clays FUNraising activity would offer a unique event for corporate and business involvement while helping Alaskans with Cystic Fibrosis.
Phone: (907) 830-6048